Monday, January 28, 2013

Best Medicine For MS
The type of medicine that I inject into my body every night, is Copaxane.  I don't know what to think of that medicine. My hope is that it starves off relapses.  Sense I haven't seen many relapses.  I have to believe it is working.  I've discussed before that a good defense from MS was probably a multifaceted offense.  So, the medical protection from MS is only one of my strategies.

Last year my defense was my diet and it's seen many changes.  In January last year I quickly become a vegetarian.  It was easy to eat all fruits and vegetables.   It was delicious.  I don't think I had a complaint with soy BLTs, nachos made out of cashews and macaroni and cheese made out of nutritional yeast.  Some of those meals are some of the best tasting meals  I have ever eaten.  These experiences proved to me that knowing how to cook or follow a recipe were very important.

Shortly after that, in June I switched to a Paleo type of eating.  I've looked at food as a carbo, protein or fat fuel.  If something wasn't only made out of one of this I try not to  eat it.  Recently I have tried to explain this philosophy to my girlfriend.  She wants to be able to prepare me food that makes me happy.  I try to tell her food made by her is special and it matters that she made it.  Her and I have found that the Terry Wahls program for eating was simple to follow.  Her program is 3 cups of green, 3 cubs of color, 3 cups of sulfur and repeat it every day. I've seen her program morf  with that of a paleo way of eating and the science behind it seems solid.  But all good offenses should be made current, as necessary.

My other defense Chia, Chiropractic, Exercise,  and Mediation continue to grow into my life.   I'm quickly learning that enjoying a moment is as general as I want it to be.  The details of this life have made me tired and I don't need the weight of something like MS talked about each day.  I think part of recovery from something, is to not think about it for a few days, months, years.  I think it best described as take care of yourself.

Which brings me to my favorite med cine.  It's magical, free, light, good, uplifting, hopeful, colorful, bright, intellectual, sporty, sexy, communicative, hungry, thirsty, smiley,  daring, erotic and blind.  It's something that can't be measured or weighed and hope is slow or fast.  It is being in love with a sexy female.  For some reason the feeling of love makes you forget being sick.  It's probably as simple of not having enough time in this life.   It makes you realize amazing things can happen.  Things that aren't studied in medical school.

I still take me medicine for now, but I see that love is part of the solution of life. 

Friday, January 11, 2013

Living With MS

For many people, who have read this blog.  They maybe saying who cares or who wants to hear from a person with MS.  Well I hate to break it to you but there are a lot of people who want to hear a story of hope.  After my last blog I realized that was why I was blogging the story of my MS.  I touched basis on diet and described some of the things I'm doing now and possibly in the future.  At the end of the day, I've realized the reason for this blog is show you are allowed to have MS and hope.

Yes, what you put in your mouth and your body is very important.  But equally important is how you think about things.  There are those that say that what you think begins a chemical reaction that affects your entire body.  If you listen to people like Daniel Amen (author of "change your brain, change your life") the thoughts if gratitude produce different chemicals for your brain then the thoughts of anger.  You can ask yourself, how often have you gone to sleep to thoughts of gratitude?


For me, this has been something I've noticed that living cleaner life has effected.  I've noticed this with the inner voice that talks to myself in my head.  Spending time with feelings of gratitude and happiness has changed that voice.   It used to be aggressive and down right mean.  I would use a lot of vulgar language but this would be in my head and no one but me knew it existed.  Having this voice change has been nice and a welcome change in my life.

I'll continue to write this blog because it is a way for me to show my gratitude towards a disease.  It helps me talk about the disease and it allows me to let go of unwanted feelings.  Most of all it gives me hope.  Hope that my life will not be defined by MS and hope that others like to hear about someone with MS who has hope.  I will write more and as often as time allows, but in the short term I would say to people with MS or any other disease.  The best thing for you is hope.   Surround yourself with hopeful people.  Eliminate lengthy interactions with people who do not carry a lot of hope.  Remember, you deserve it, regardless of having a disease or not!

Friday, January 4, 2013

Anniversary

There's no other way to describe it, but for lack of a better word it has been one year.  My what a year.  Raising kids, fixing meals, cleaning the house, working, and playing.  MS doesn't automatically come with a rest.  It is with you as long as you want it.  A good friend of mine, recommended that I start a blog and said it would  do good for others to hear about my MS, or what I like to call my specialness.

It did begin a year ago, but like many it was years before that the journey first began.  As many do, I went from Dr to Dr looking for a reason that I had a weird sensation under my right foot and my hands were feeling numb on and off.  I  ended up at a neurologist's office and he quickly ordered an MRI and Spinal Tap. When the results , were turned into him, he labeled me with that of MS.  Since that day, over the last year I have heard so many  reactions to having MS.  I've had people explain that I should keep it to myself.  There have been those that say "sorry". There have been those that say "what is it"  and luckily those that say "you seem like the same person to me".  In weird ways probably everyone is right in their own way.  To me I've become cynical, satirical, ironic, uncoordinated, and very grateful. 

I guess I've never been the type to leave well enough alone.  It's been no different with MS and most of this year has been me learning everything I can in or around MS. I've joined the MS Society, the National MS Association,  MS Direct,  Terry Wahls Website.  I've been to support group meetings, received online counseling.  I've attended and participated in a "free from falls workshop".  Enjoyed a day at a Historical Train Station and received a "brighter tomorrow" grant from the MS Society.  Suffice it is to say, there is a lot around a label like MS.

For me, after the initial shock of MS.  It's been important for me to learn as much as I can about it, and learn to live with it. From the beginning of this year it became obvious to me that it was going to take a multi point plan to cover the things that MS can affect.   I knew that Medicine was going to be part of my defense but I've also known that a good offense is usually the best defense. My offense began with nutrition. I've learned an amazing amount about nutrition but there is always room to tweak.  My next area to solidify has been chiropractic care with Dr. Dennis Smith. Luckily the chiropractor that I meant was also a neurologist.  With my  plan multi faceted, it has also included religion and the  law of attraction.  In the future I hope to include, yoga, Tai Chi, more movement, and more energy.

With all of these things there have been ups and downs.  Sometimes I don't feel very good and I still have to go and see the neurologist. Sometimes it just gets old and you don't want to take your injection.  Sometimes you get tired of people asking, "you can't eat that? uh?" This plan and all the ups and downs of MS will be part of this blog.  The only thing I'll say for now is "what you think you will be tomorrow, you will be".